Updated as of August 2014, this practical book will demonstrate proven methods for anonymizing health data to help your organization share meaningful datasets, without exposing patient identity. Leading experts Khaled El Emam and Luk Arbuckle walk you through a risk-based methodology, using case studies from their efforts to de-identify hundreds of datasets. Clinical data is … [Read more...] about Anonymizing Health Data: Case Studies And Methods To Get You Started
Privacy and Technologies of Identity: A Cross-Disciplinary Conversation provides an overview of ways in which technological changes raise privacy concerns. It then addresses four major areas of technology: RFID and location tracking technology; biometric technology, data mining; and issues with anonymity and authentication of identity. Many of the chapters are written with the … [Read more...] about Privacy and Technologies of Identity: A Cross-Disciplinary Conversation
Rapid advances in human genomic research are increasing the availability of genomic data for secondary analysis. Particularly in the case of vulnerable African populations, ethics and informed consent processes need to be transparent-both to ensure participant protection, as well as to share skills and to evolve best practice for informed consent from a shared knowledge base. … [Read more...] about Informed consent and ethical re-use of African genomic data
Lincoln Rhyme faces “an Orwellian nightmare” (The New York Times) as a twisted techno-genius destroys lives with impunity by stealing personal information from behind the impenetrable walls of cyberspace. Rhyme’s cousin Arthur has been arrested on murder charges, and the evidence against the estranged relative Lincoln hasn’t seen in years is perfect—too perfect. Lincoln and … [Read more...] about The Broken Window
The Personal Information Protection and Electronic Documents Act (“PIPEDA”) was introduced in 2001 to protect Canadians from inappropriate collection, use and disclosure of their personal data by organizations in the course of commercial activities. Five years later, it is not clear to what extent organizations are in fact respecting the legislation. This study was designed to … [Read more...] about Compliance with Canadian Data Protection Laws: Are retailers measuring up?