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Informed consent and ethical re-use of African genomic data

 Author: Galen EB Wright, Adebowale A Adeyemo, Nicki Tiffin  Category: Ethics, Health, Privacy Practice, Public Policy  Publisher: Human Genomics 8, 18  Published: 2014  Buy/Download
 Description:

Rapid advances in human genomic research are increasing the availability of genomic data for secondary analysis. Particularly in the case of vulnerable African populations, ethics and informed consent processes need to be transparent-both to ensure participant protection, as well as to share skills and to evolve best practice for informed consent from a shared knowledge base. An open dialogue between all stakeholders can facilitate this.

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