The Privacy Advisor for Research Services plays a key role in assisting PHSA researchers and research staffs understand and meet privacy requirements for research. Reporting to the Chief Administrative Officer, Research, with a matrix reporting relationship to the Chief Freedom of Information (FIO) & Privacy Officer, the Advisor helps develop and utilizes proportionate risk evaluation tools, and provides practical, solution-oriented recommendations, advice and assistance to build accountable information stewardship and privacy conscious practices that enhance the conduct of health research within a complex e-health environment. The Advisor develops privacy policies, procedures, processes, communications, education and compliance tools that enable research and strengthen management of institutional risk. The Privacy Advisor develops information sharing agreements and data management plans, and works directly with researchers to identify privacy and security risks, and provide advice and support to avoid or mitigate those risks. This is done in alignment with research privacy and information governance best practices, PHSA strategic priorities, evolving provincial and local eHealth initiatives and conformance standards, policy and legislation. The role requires consultation and coordination with PHSA Information and Privacy, PHSA Risk Management, Information Management Information Technology Services (IMITS), and the Office of the Information and Privacy Commissioner of BC.
- Provides interpretation and expert advice, both verbally and in writing, to PHSA’s research community on access and privacy legislation and information management standards and principles, with a special emphasis on analyzing privacy risk and applying privacy conscious stewardship behaviors into research projects and workflows.
- Develops, implements, and evaluates enterprise-wide education program, training and materials, and practical job aids and tools that strengthen understanding of research privacy requirements and facilitate ease of compliance.
- Provides practical and timely compliance solutions to facilitate the conduct of health research by PHSA-affiliated researchers in accordance with the Freedom of Information and Protection of Privacy Act (FIPPA).
- Provides input into development of, and utilizes proportionate risk-based framework and tools that facilitate timely approval of low-risk research initiatives.
- Provides expert privacy advice, including development of privacy policies, information sharing agreements, information sharing plans, data management plans and privacy impact assessments.
- Maintains current knowledge of provincial and federal privacy laws, policies and procedures for privacy and management of data sets in clinical systems and research initiatives, including in an online (eHealth and internet-based) environment; monitors changes in legislation and provides information regarding the implication of changes to relevant stakeholders to ensure organizational adaptation and compliance.
- Supports PHSA Information and Privacy in responding to and investigating privacy breaches related to research.
A level of education, training, and experience equivalent to a Bachelor’s degree in Health Administration, Business, Information Management or related discipline and a minimum of five (5) years of recent, related experience in a comparable role. Experience or familiarity with a research environment is preferred. Completion of the Information Access and Protection of Privacy Certificate Program is an asset.
Demonstrated expertise in the area of information privacy concepts, tools and methods. Comprehensive knowledge of privacy legislation, practices and processes, preferably within the eHealth and/or research environment. Ability to present and communicate effectively, both verbally and in writing, with all levels of the organization. Demonstrated ability to foster effective working relationships, both internally and externally, and strong customer service ethic. Proficiency with MS Office toolsets (Word, Excel, PowerPoint). Demonstrated ability to exercise sound judgment, critical thinking and effective decision-making.