Population Data BC is a data and education resource facilitating interdisciplinary research on the determinants of human health, well-being and development. We support secure research access to individual-level, de-identified longitudinal data on British Columbia’s 4.6 million residents, linking data across various sectors such as health, education, early childhood development, workplace and the environment. We also offer a professional specialization certificate in Population Health Data Analysis, training researchers across Canada and around the world. Population Data BC is based at the School of Population and Public Health (SPPH), which is in the Faculty of Medicine at the University of British Columbia.
The Pacific Autism Family Centre (PAFC) is a proposed centre of excellence for individuals with Autism Spectrum Disorder (ASD) and their families. The PAFC’s core purpose is to be a Knowledge Centre: Bringing together state of the art resources for research, information, learning, assessment, treatment and support; and building capacity to address the lifespan needs of individuals with ASD, and their families across BC.
Under a partnership between Population Data BC and the Pacific Autism Family Centre, the Privacy Officer will work to establish the policies and agreements required to help the PAFC achieve their long-term vision. The Privacy Officer will support the PAFC’s desire to enable privacy-sensitive, ASD-related research, particularly future research with data collected from individuals with ASD and their families that may be linked to other data sets held by Population Data BC.
This position reports to and works with the Privacy and Governance Lead of Population Data BC. The Privacy Officer works on behalf of the Pacific Autism Family Centre and is expected to liaise with the Office of the Information and Privacy Commissioner of BC, health authorities, provincial government ministries, public bodies, and other research and not-for-profit organizations across Canada.
Environmental scan of and information gathering from organizations in Canada/BC that have similar aspirations (e.g. Rick Hansen Institute)
Review and identify relevant information from PIPA guidance documents from BC’s Office of the Information Privacy Commissioner (e.g. https://www.oipc.bc.ca/guidance-documents/1438)
Conduct a full review of the plan for PAFC (i.e. determine role of CIO, privacy officer, data steward; where will responsibilities lodge; who has responsibility for data governance)
Draft a full suite of policies and procedures, including but not limited to:
– outsourcing and service provision for IT
– primary data collection
– data storage and backups
– staff privacy training
Create a template Information Sharing Agreement to be used by PAFC
Develop relationships with the Office of the Information and Privacy Commissioner, Ministry of Children and Family Development, and Ministry of Education
Establish PAFC as a participating data steward with Population Data BC, including decisions about location of data and management of data disclosures
Create ongoing sustainability plan including staffing plan for operations, maintenance, and remaining current, as this relates to the data management life cycle
Plan and participate in initial audit review of operational design, and then plan for audit after 12-18 months of operation
This position reports to the Lead, Privacy and Governance.
Works with considerable latitude and performance is reviewed in terms of achievement of project objectives.
Consequence of Error/Judgement
This role will work under strict confidentiality. Population Data BC’s core activities are critically dependent on the health information systems that have been developed and are maintained. Any breach in data security would place the reputation and future of Population Data BC as well as its partner organizations at risk.
Thinking creatively about the challenges facing the organisation and responding rapidly to changing needs and priorities will be necessary. Accuracy is essential since errors may have implications that affect the organization, the research community, stakeholders and public bodies.
Undergraduate degree in a relevant discipline. Minimum of three years experience or the equivalent combination of education and experience. Well-versed in information and privacy legislation, specifically PIPA and FOIPPA
Experience and familiarity with writing Privacy Impact Assessments and Security Threat Risk Assessments
Experience with development, negotiation and oversight of Information Sharing Agreements
Facility in developing relationships, e.g. with Privacy Commissioner, public bodies
Proven track record in independent work
Strong written and verbal communication skills
Some familiarity with IT structures, from a controls perspective
Familiarity with primary data collection Due to the privacy-sensitive nature of the data holdings at Population Data BC and requirements of some of our data providers, all staff of Population Data BC are required to complete a Criminal Record Check.
Desired Start Date: 2016/09/12