Work is about to start on developing a National Standard for the Governance of Human Research Data.
Themes to be addressed will include:
- Privacy/human rights/democratic rights/digital identity
- Data ownership, intellectual property, including copyright
- Data quality and grading
- Interoperability of systems
- Safe use
- Trustworthiness
- Cybersecurity
- Data sovereignty and residency
- Credentials and accountability of new categories of professionals involved in data
This joint initiative of the CIO Strategy Council and the Human Research Standards Organization will lead to standards that ensure that research organizations have access to the necessary structural components, oversight capabilities, and procedural documents to produce reliable, verifiable, and credible research data in an environment that promotes efficiencies and mitigates risks.
Human research can provide knowledge that assists society in many ways, including through the production of socially beneficial goods, services, and improved insights into human behaviour. Achieving these benefits in an ethical way requires respect for the dignity and rights of those whose data and participation make these benefits possible. It is incumbent on organizations conducting human research to govern themselves accordingly.
The standard will be developed as part of the CIOSC data governance series of standards and will have the designation of CAN/HRSO-300.03/CIOSC-100-10-20XX. With a joint standard, it is the responsibility of both standards development organizations to ensure that their respective processes are respected and followed. As such, we will be sharing during the commenting stages with Technical Committee 1 Data Governance to get the feedback and expertise of our community.
Anyone wishing to be considered to sit on the Joint Technical Committee, to assist in the development of the early drafts, should contact Darryl Kingston at the CIO Strategy Council by no later than November 4th.
